What’s in your toolbox?

I’ve always been a rather independent person. In junior high and high school (and even younger), I wasn’t one who longed to fit into the “in” crowd. I didn’t care particularly what people thought about me or whether I was popular or not. It’s not that I wasn’t friendly or didn’t have friends. I just didn’t live or die by the acceptance or rejection of other people. Besides, the fact that we lived 50 miles away from the junior and senior high schools I attended did not give me many opportunities to interact socially with my peers outside of school. For six years of my life, three hours a day were spent on a school bus, riding an hour and a half each way to and from school. I rarely had the opportunity to participate in after school activities or do things with friends after school. I read a lot of books, got all my homework done on the bus. I was a bit of a book worm, so, even during school hours, I would be found more often than not reading a good book in the loft of the library during free time instead of socializing. I participated in the things I liked (clubs, school musicals, yearbook staff, etc.) and didn’t sweat the things that didn’t work out for me to do. I was aware of being an outsider, but it really didn’t matter that much to me. Our church was 30 miles the opposite direction, so there were few activities outside of church, either. On top of that, until I was a junior in high school, we lived 2 miles outside of the closest town, which had a population of 200.

Both of my parents were school teachers in the same school I attended (my mom taught me in 3rd grade; my dad taught me in 5th, 6th and 12th grades). My dad was also the local Baptist preacher, so I grew up feeling like I had the word “example” stamped on my forehead. Preacher’s families had to look like they were perfect, you know. Teacher’s kids, too. As a teacher’s kid, especially in grade school, the expectation by others was that we should be good students and should do well in school. The funny thing is, when we did well in school, we would have people tell us, “You did well because your parents helped you.” When any of us didn’t do well, we would hear, “Why didn’t your parents help you do better?” Being both a teacher’s kid and a Baptist preacher’s kid in a state that has one of the highest Mormon populations (we lived 200 miles from Salt Lake City, UT) kind of set us apart a bit even further. So, growing up, we were pretty isolated and my closest friends and playmates were my brothers and sister. The day I graduated from high school, I was so glad to be DONE – done riding the bus so far, done driving to church so far, done having to always feel like an example, glad to be moving on to the next phase of my life, glad to be moving to a bigger city (Denver) with more people and more opportunities – that I literally walked out the door of the school after the graduation ceremony and never looked back.

As an adult, though, I realized that my independence in high school, coupled with the long distance from the social world of school and church, was a bit of a disadvantage in that it really had not taught me how to make close, lifetime friends. My problem was that, while I enjoyed having friends, they tended to be situational friendships rather than friendships that lasted a lifetime. Growing up, I had situational friends at school and I had situational friends at church. The friendships I had made operated within one or the other particular, isolated situation. That’s what I knew – situational friendships. I felt like I didn’t know how to make friends or how to be a really good friend outside of a particular situation. I decided to work on establishing deep and lasting friendships.

One of the problems with my “making deep and long-lasting friendship project” was that my independence and lack of proximity to social activities growing up had made me somewhat socially awkward. I’ve never wanted to be the center of attention or the life of the party. I tended to sit off to the side of groups, waiting for someone to befriend ME, to reach out to ME. I didn’t really know all the “rules” for making and keeping longterm friends. I tried all the typical friend-making things I could think of. I volunteered at church and in the homeschool groups. I served on the board of homeschool groups. I taught Sunday School classes. I set up play dates for the kids. I tried everything I could think of.

The thing about establishing a connection with some and becoming true friends is that it takes time. It takes a desire to be friends and a commitment on the part of both parties. Most importantly, I discovered, is that it takes room in the other person’s life for you. That’s a biggie. It has to be a two way street.

There was one gal in the church we attended that I really tried to become good friends with. Our kids were close in age, our husbands got along, she was a lot of fun and I really liked her. And so I pursued her friendship (not in a weird, stalking way; just tried to be available as a friend, hoping to develop a good friend). I babysat her kids whenever she asked me, we took her kids with us on outings, we invited them to do things with us. We became friends, yes, but it was definitely not an equal friendship. Have you ever felt like you were down the list a bit with someone when it comes to friendship? She already had a longstanding best friend…and a second best friend…and a third best friend…and none of them were me and never would be me. She already had a circle of close friends and really didn’t have room or the time commitment or the desire for another member. I was outside of that circle.

This really came to light when I invited her and her kids to dinner one night when her husband was out of town for several days. I went all out. I guess I wanted to show her that I could be a good friend when she needed one. I cooked a turkey dinner with all the trimmings, right down to homemade rolls and pies. It took me all afternoon to get ready. The time came for her to come to dinner…and we waited…and we waited…and we waited. She finally showed up two hours late with barely an apology. She had been at her BEST friend’s house and just didn’t bother to call me to let me know she would be late. I felt so unvalued and stupid for even trying. One other time she un-invited us at the last minute to her New Year’s Eve party (the one with all of the close circle friends, the “in” group at church) with an excuse that her oldest daughter didn’t feel like Eric liked to play board games and that really bothered her daughter. It was the first time we had been invited into the “in” group’s private activities. I just don’t think there was room for us.

Another time, a ladies activity was organized for an evening out and we all were to meet at the church. I showed up, along with a couple of other gals, and we sat in the parking lot for a while. Finally, we realized no one else was going to show up and so we went home. Later, we found out the location to meet had been changed, but only the “inside” group members had been called. No one had even thought about calling the rest of us. (I know we weren’t the only ones in the church aware of the “inside” group…and then everybody else.) It wasn’t on purpose; it just never crossed their minds to call us. They all had a great evening out, we learned, while the rest of us just went home. We stayed friends, as did the rest of our families and the families in the group and other people in the church, but I always had a keen awareness of where I stood in the friendship hierarchy. I also learned that it doesn’t do any good to pursue friendships with someone who doesn’t equally value you.

All of those situations were bitter pills to swallow, but I swallowed them (along with my hurt), put on a good face, and carried on. That’s what I’d learned growing up as a preacher’s kid, wasn’t it? To hide whatever is wrong and put on a good face; be the perfect example of…whatever. I hadn’t learned how to problem-solve within interpersonal relationships. I had learned to suck it up, deal with it privately, get over it, smile, and keep going.

So, why am I telling these stories? Because whatever tools that are in your toolbox at the exact moment your child dies – emotional, spiritual, experiences, upbringing, support, family, mental health, physical health, whatever the tools may be that are available to you – those are the only tools you have available to you as you begin your walk into the “valley of the shadow of death.” When a child dies suddenly, there is no time to develop the tools needed to handle that horrendous loss. What you have in your toolbox is all you have in your toolbox to work with.

For me, most of my friendships were still situational. I realized this fact when the kids were all in college, I was done homeschooling, and I was transitioning into a new stage of my life. No matter how hard and how many years I had tried to rectify my tendency to develop situational friendships, I hadn’t entirely succeeded in breaking that pattern. It didn’t seem as though those friendships were carrying over into the next stage of my life, and it made me very sad. I felt very alone. I started going to the ladies Bible study at church (we were going to a very large church by then), trying to connect with people there. I went early, talked to people, made notes of what we had talked about so I wouldn’t forget. I reviewed my notes before going each time, in case I saw the same gal again. I invited someone now and then to have lunch with me afterward. Sounds pathetic, I know, but I didn’t want to live my life without friends. Once again, I found people have to have room in their lives for you and that it takes time. I decided I needed to put my energy into going back to school to prepare for the next stage of life…and then Jason died two months later.

So, when Jason died, my toolbox contained mostly situational friendships, biological family that all lived a long distance away, a large church we attended where we were not well connected. Nearly all of those people did not or could not walk with us after Jason died. They all disappeared. It contained an independent view of myself. It contained self-reliance. I was viewed as independent and self sufficient by others, too. It contained a helpful personality. I grew up in a family that never asked for help (we were taught to be very proud our stoic, independent Norwegian heritage), and so I didn’t see myself as needing help. I was a person who provided help and support – facilitating organizations and meetings, organizing study groups and field trips, helping out when someone needed assistance, teaching classes, etc.; I wasn’t the person who needed support or help.

Some tools I needed were definitely lacking. My toolbox lacked a strong support system. It lacked family that lived close by. It lacked the ability to know how to ask for help. (When I did ask for help, I failed miserably.) It lacked the ability  to know how to confront situations and resolve them, instead of swallowing the bitter pills and carrying on. It lacked any knowledge on how to handle such deep grief. My toolbox lacked a lot of the tools I needed for the walk of grief ahead of me.

Thankfully, my toolbox contained a strong relationship with my daughter and husband. It contained the connection to a gal who, although we were not close at the time of Jason’s death, became and still is my best friend. I don’t know what I would have done without them. It contained my intellect and my commitment to get an education to prepare for the next stage of my life, having started back to school two months before Jason died. It got me out of bed and out of the house.

Out of necessity, I have developed other tools that are now in my toolbox. Not all of them are particularly helpful, though. I carry a big shield that I keep at the ready. I hide behind it at times. I guard my heart with it. It keeps me from being open and vulnerable, especially with new people and those who have hurt me. It’s one I developed out of necessity – one I developed early on when my heart was so raw and hurting, and the people we counted on could not be there for us, deserted us, and hurt us so badly. It protects me from not being hurt like that again. It also keeps me alone and makes it difficult to make new friends. It also contains a lack of trust, a lack of belief that other people have the possibility of having our best interest at heart. And so, I hold people at arms’ length. I’m trying to change that one, but it’s not an easy thing to do.

My toolbox now contains the tool of deflection. I learned early on that most people don’t know how to react to being told our son died. Some do not react very well. Some pretend like I didn’t even mention Jason. Some people get really awkward, and then start treating us like a pariah. Some people act like we are invisible and that they don’t see us.

The summer after Jason died, I ran into a clerk that I knew in our local Albertson’s. She only worked part of the year (summer), since she and her husband wintered in Arizona. As she helped me with my deli order, she was very friendly and chatted away. Then she asked, “How are the kids? What are they up to?” I hadn’t quite developed this tool of deflection yet and said, “I suppose you heard Jason was killed by a drunk driver earlier this year.” It was like someone slammed the door in my face. Her physical reaction was dramatic; she just sort of crumpled. She didn’t say another word, frantically finished my order, shoved it across the counter at me and tried to get away from me as quickly as she could. She was a mess!! I went behind the counter and gave her a hug. I didn’t know what else to do. She wasn’t being mean or anything; she just didn’t know what to do or say, I’m sure. I deflect talking about Jason’s death or steer conversations away from certain topics, not because I don’t want to talk about him or because I don’t care about him, but that I’d rather choose how and when I talk about the death of our precious boy. I don’t want to intentionally cause awkward situations. I guess I just need to make sure that Jason’s death matters to the person I’m talking to and that they can handle it. It hurts me too much to feel that someone doesn’t care that Jason died.

My toolbox also contains compassion. I no longer have the fear of talking to someone who has lost someone close. When I worked for a probate attorney in Oklahoma, I had no hesitation in expressing my condolences and asking how I could help. I could talk about the subject of death with the client. I’ve always been one who hugs people, but now I am no hesitant to step forward and hug someone who is hurting.

Although this certainly is nowhere near the complete list of the tools I had in my toolbox when Jason died, the tools I lacked when Jason died, or the tools I have developed since Jason died, I think you get the idea. We bring with us into deep grief – like tools in a toolbox – our upbringing, our personality, our experiences, our education, our emotional growth. We bring our attitudes, our strengths and weaknesses. We bring our connections to friends and family. Whoever we are to that point in our lives and whatever tools we have developed and have available to us at the exact moment our child dies, especially in the case of a sudden death, those are the only tools we have available to us at that exact starting point of our grief journey. It affects so much of how we grieve, how we react, how much support we have, how long it takes us to come to grips with who we are now and what the world around us now contains (or doesn’t contain). It affects whether or not we have PTSD.

It’s important to know that there are now (better than when Jason died) some really good resources out there, and some really good information for both the parent who child has died and those who know a parent whose child has died. I am so thankful for bereaved parents who write and talk about their experiences. By far, no two grieving parents have the same experience after the death of a child. We are all so different, our losses are different, and the available tools we have in our toolbox are different. We can learn from each other, though, and encourage each other. We can’t affect how other people treat us or whether or not they stick beside us. But we can talk about our experiences and what worked and didn’t work for us.

What’s in your toolbox? Would love to hear your input on this subject.


© 2016 Rebecca R. Carney

Strong, Brave, Courageous

It’s fairly common for parents whose child has died to have someone tell them how strong they are. I think that perception comes from the fact that we are able to bury our children and still function. People see us greeting memorial or funeral attendees and wonder how we can stand up there and actually do that. They think we must be so strong. Initially, I think our instinct to behave as we have in the past takes over. We are numb, and so we instinctually try to act or react, at least for a little while, as we would have before our child died. It’s sort of like muscle memory.

Muscle memory is a term that means our muscles “remember” how to do something. It’s procedural memory, meaning we have repeated a procedure until our muscles automatically complete the task. For example, last May we went on vacation to Hilton Head Island, South Carolina. One of the best ways to get around the island is by bicycle. Although we used to ride bikes a lot when I was a kid, I hadn’t been on a bicycle in nearly 40 years. I was nervous about riding a bike again after all those years, but I got on and rode as if I had never missed riding all those years. My body – my muscles – remembered how to ride a bike.

Muscle memory applies to a lot of activities we do – typing, skiing, writing, playing video games, playing an instrument, even walking. We don’t necessarily have to think about these activities, we just do them. I think it’s very interesting that Alzheimer’s patients may not even remember that they were musicians, but can sit down and play the piano or some other instrument.

At first, that’s what bereaved parents do. We try to act according to our previous patterns. We can’t keep doing that, because nothing is the same, but I think that’s how we start out.

I tend to organize and plan things. I’m not as organized as some people, but I spent years organizing homeschool field trips, classes, school schedules, etc. So, when Jason died, my instinct was to take the steps necessary to do what needed to be done. Honestly, I don’t know how I did it.

I went home and started calling people. Who else was going to call them? I had called Eric from the accident site, making sure he had someone else who drive him to our house. I called my sister. I called my mom. I called some of Jason’s friends. I called church people I thought of as extended family. I answered the phone when one of Jason’s tutoring students called and had to tell him Jason had died. I hugged and comforted people who came by the house. I ran to tightly hug Joe or Jenna when they collapsed and sobbed uncontrollably. They did the same for me. The rest of that day was mostly a blur. I was a mess. I had such horrible headache from crying. The next day, though, there were things we needed to do.

It’s strange. Think about planning an event – a party or wedding – and how much time and effort goes into such an event. Weeks, months of planning. Bereaved parents have only a few days to plan their child’s funeral or memorial service.

There is so much to do and so many decisions to make after a child dies. Choosing a place to bury your child. Choosing a casket. Choosing a headstone and what to put on it. Flowers. Visitation or no visititation. Open or closed casket. Funeral or memorial service. Private family graveside service, or open attendance memorial or funeral. Location, date, time of service. Officiant. Music to be played before and during the service. Asking people to participate in speaking or playing an instrument or singing. Choosing photographs for the video montage and music to accompany it. Picking out photographs or memorabilia to display at the service. Picking out what your child should wear. Picking out what you will wear. Trying to figure out where out of town guests would stay and who would get them from the airport. Talking to the officiant to plan the order of service. Deciding which newspapers to put notices in and what to say in the notices. On and on it goes. It’s overwhelming. We had a private graveside service and a open attendance memorial, so we had to plan two events. We made all of these decisions in a matter of a day or two. We had help with some things, but most of the plans and decisions were only ours to make. It’s just crazy for me to think about, even now.

While we were doing all of this, Alina’s parents were doing the same thing. After we made all of our plans, we found out (without any prior knowledge for any of us) that we had chosen the exact same casket as Alina’s family and a burial plot one space away from where Alina would be buried. The odd thing to me – and it has always seemed so odd – is that a person named Henderson is buried between them, and Jesse Henderson (don’t know if any relation) is the person who killed Jason and Alina.

Were we strong or were we just acting on instinct? Perhaps some of each.

I recently read a post on Mother’s Day that talked about how brave mothers are who have lost a child. I’ve never thought of myself as strong or brave. I see myself as broken. I shattered when Jason died, and I feel like I still have so many pieces missing. I’m still such a mess sometimes. I struggle and have lots of scars from Jason’s death and all that happened afterward.  But that post started me thinking of the paths bereaved parents journey after their child dies and some of the situations we encounter that are unique to our journey, and I just have to say that I have changed my mind. Bereaved parents: We ARE brave. We ARE strong. We ARE courageous.

We bury our children and keep on going. We try to find a reason to keep on living. We go back to school. We go back to work. We have to learn how to help others deal with our loss when we don’t even know how to help ourselves. We comfort others when we are are the ones in desperate need of comfort and understanding. We educate ourselves on the process of grieving. At times, we have to put on a mask to hide our grief or find ways to make our grief palatable to those around us. We deal with friends who disappear, either initially or after a while when we don’t “recover” quickly enough for their comfort. We endure people telling us what to do and how we should grieve when they have no idea what they’re talking about. We deal with the hurt when people pretend they don’t see us and choose a getaway down another grocery aisle. We forgive those who hurt us even when no one has asked forgiveness. We have to figure out how to find a new normal. We keep working on rebuilding our lives. We take care of our remaining families.

We deal with people judging us for how we grieve. We deal with people telling us we should “move on” or giving us a time limit of when “we should be over it.” We make allowances for inconsiderate people who don’t understand what it’s like to lose a child. We rejoice at the weddings or graduations of others, knowing our children will never have the same opportunities. We find ways to honor the memory of our children. We make new traditions for holidays while embracing memories of ones gone by. We write and speak and try to educate people on how to help others whose children have died. We live our lives, day in and day out, with broken hearts and a burden of grief we hope no one else will ever have to carry. We cry until we can’t cry any more, and then dry our tears to start a new day. We have walked such difficult paths when it seems others have walked easier ones. We may not do it perfectly, but we keep on going. We deal with so many hard things, but keep on trying. We get knocked down and get back up. We live. We love.

I would just like to say bravo to all of you bereaved parents out there. Most people don’t have to do what we have had to do. Keep trying. Keep walking. Keep writing. Keep speaking about your children and your love for them.

Hugs to each of you,


© 2016 Rebecca R. Carney

Lost in Thought

I feel like I just need to sit and think about Jason for a bit this weekend. Thursday, March 3rd, will mark the beginning of another year without our precious, bright, sunshine-y boy in our lives. The days and weeks leading up to March 3rd are always a roller coaster of emotions for me. I’ll be going along as usual and then, all of a sudden, realize that I’m sad. It’s been enough years now that I know that, whether I consciously realize it or not, I’m very aware that the anniversary of Jason’s death is marching toward me.

This past fall we went to Oklahoma to pick up what’s left of our “stuff” and had it shipped to North Carolina where we live. We had disposed of most everything we owned when we left Washington, keeping only things such as photographs and memorabilia of our lives. When we left Oklahoma, we were not sure where we were going to go and what we had left ended up going into a storage unit and has remained there for the past six years.

I have recently opened the boxes to briefly remind myself what was in them. Jason’s hats. Jason’s chess set. The police investigation records from the accident (which are tightly taped shut, and I have never looked at and probably never will). Jenna’s baby bonnets. Jenna’s favorite stuffed animal. Eric’s favorite toy as a baby. The guest book from Jason’s memorial service. Photographs. Memories.

It’s all very bittersweet. Photographs of wonderful times long ago. Pictures of a smiling woman that I know is me…or was me…and I’m aware that I am no longer that person in those pictures. People I used to know, people I thought were my friends. Fun times with extended family. Drawings and notes from the kids. Memories that make me realize how much I miss Jason and those times long gone. Memories of a time when things were much more simple and I didn’t have this emptiness and sadness inside of me. Memories that make me smile. Memories that make me cry.

I am so very thankful Jason was born into our family. I feel so privileged to have been his mother. I found this as I was going through some boxes this week, an email Jason wrote to me in October, 2001 that I had printed off. So thoughtful. So sweet. Bittersweet. It makes me smile, and then it makes me cry.

Email from Jason

Oh, Jason, how I miss your kind and loving heart, your beautiful smile, your wonderful hugs. I miss you. I love you. You will never be forgotten.

© 2016 Rebecca R. Carney

The Hidden, Chronic Pain of Grief

As a parent whose child died, I learned that I had to find a way to put on a mask in order to make other people comfortable around me. I felt like I had to appear to be “okay,”

john pavlovitz

I have a couple of close friends who have struggled for years with undiagnosed chronic illnesses, and they’ve both shared with me on several occasions how isolating their conditions became because their pain wasn’t visible to others.

In the absence of outward, identifiable symptoms, people either questioned the reality or severity of their injuries, or they were simply unaware of them. If in another’s presence my friends smiled and refused to mention it, then their suffering (though real and debilitating) remained hidden. They appeared quite healthy and normal and even happy—all the while their insides were being ripped to shreds.

This is how it is to be a survivor of a loved one.
This is life in the Grief Valley.
Your pain is chronic and deep and most often, internal.
To show the suffering when it comes just simply won’t work most of the time.
So you hurt and you hide.

My father died two years ago…

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We Are Lost

So much changed when Jason died. My sense of connected-ness to my life, to people that I knew and thought were my friends, to God, to my faith, to my family, to a church and to a place to call home. All of these things literally changed overnight, that horrendous night of March 3rd.

The thing about such a huge loss is that, when your whole life is turned upside down and so much is lost, you have to work at rebuilding nearly everything and it takes so much longer than you or anyone else would expect. We are all a work in progress, but when a child dies, it’s just so much more work to rebuild so many things from scratch. It’s like a ship that has been hit by a hurricane and is ripped away from its safe harbor. You end up in a dark and violent storm, far away from land. The dark, huge waves of grief tower over you, threatening to pull you under. All landmarks are gone. You lose your bearings and all moorings have been ripped away. You feel lost in a huge sea of grief, far from anything and everything that was familiar. You fight and fight and fight not to go under while trying to get back to some semblance of solid and familiar land.

The problem is that, once you reach some kind of shore again, there is no “familiar land” left. Not only has the landscape changed, but you have changed. Both you and your life have been ravaged by the hurricane called grief. The huge waves and deep loss has caused irreparable damage. What was comfortable and familiar is now a stark and alien land. Landmarks are gone. Friends are gone. People don’t recognize who you are. They may not like who you are now. Your energy level and focus is at zero. Deep grief and trying to find a “new normal” (whatever that is) takes its toll. It’s such hard work and it takes so long.

The “Becky” I was before Jason died was confident and independent. She was a wife of Joe and a mother of three who homeschooled her kids until they went to college. She felt like she had done a reasonably good job raising her kids and preparing them for success in life. She was a leader in the homeschool groups to which she belonged. She set up fun field trips and organized graduation trips. She loved to laugh and sing. She had hobbies and interests. She had friends. She served on the boards of homeschool groups. She was involved and connected. She knew she was transitioning to a different phase of life from homeschooling mom to productive workforce employee. She knew some relationships were situation and were going to change, but she was getting used to the idea. She had a plan. She was going to go back to school and then was going to get a job where she could be productive. She knew who she was. She was looking forward to good things ahead – to her kids getting married, to having grandkids to spoil and love, to having a meaningful job and using her abilities to contribute to a better life for her family. She had hope.

And then that person was gone. That life was gone.

The “Becky” I am now still feels lost in some respects. I don’t think I’ve ever reached that place of “arriving,” whatever that is, wherever that is. When Jason died, the life I knew was gone, through no choice of my own. The “Becky” I knew was gone. I was thrown violently into a deep and dark hurricane of grief and I was in that storm for a very long time. I landed in a barren and foreign land, only to be pulled back into a sea of secondary losses. I was lost, lost in grief. Lost in aloneness. Lost without my bearings. Lost without my boy.

In the years after Jason died, I tried to keep moving forward. I had started back to school two months before Jason died, and I kept going for two years. Jenna and I both went back to school the following week after Jason died. Joe went back to work. I may have just gone through the motions, but I did what I could to keep moving forward. We all did. I did well in school and made the dean’s list every quarter. I don’t know how I did it, quite honestly. In spite of everything, we kept on going. I tried to figure out how to “grow,” even though I was grieving so much loss. Too much loss. I tried to find a job. I tried to find meaning and a reason to keep on living. I have learned that it’s not an easy thing to do following the death of a child.

My husband really struggled after Jason died. Understandable. He was really close to Jason and had always been involved in the kids’ lives. It was hard for us to live in a house that had been so full of Jason’s presence and so full of life, but screamed with emptiness after Jason’s death. It was hard to have to drive by the accident site day after day after day just to get to school and work. It was hard to lose the friends we had and to be so alone. I was struggling so much myself that I couldn’t help anyone else deal with the loss. I couldn’t help Jenna. I couldn’t help Joe. Joe felt helpless to deal with my depression and grief. Neither one of us had the energy to maintain a 4 bedroom house and large property.

Joe worked so hard all of his life to earn a decent living for his family. He worked in an industry where he always had to work really hard to stay on top of current technology, which was sometimes not easy for a non-techy guy. He was very well respected in his job. But, after Jason’s death, I think it was hard to see a reason to keep on trying so hard just to stay on top of everything. Grief makes you incredibly weary. When he learned that the company was going to downsize, he volunteered to be laid off so that none of the younger guys with families still at home would lose their jobs. Being laid off affected our income and Joe’s retirement income. He thought he would find something less stressful and more enjoyable as a second career. Although he’s tried several paths, none of them have really worked out the way he thought.

I also think Joe thought selling our house and moving from Washington would help us “start over,” so he pushed really hard to leave. He thought getting away from so many painful memories, so many painful relationships and so many places that reminded us our losses would help snap me out of my depression and deep grief. I didn’t have the energy to fight. We left a place I loved, the one friend I had made, and Eric and Jenna. In retrospect, leaving Washington caused me more harm than good. I still haven’t recovered from the losses, both primary and secondary. Jenna has moved to be near us and I am so thankful for that, but I feel like Eric’s kids – our grandkids – are strangers to us. We haven’t really had a chance to be involved in their lives, other than a week or two visit once in a while every year or so. That just breaks my heart.

I have decided that too much change compounds the already-too-much loss and prolongs the rebuilding process. Since leaving Washington, we have lived in Oklahoma, Florida and North Carolina, each for three years, and I don’t feel any closer to feeling “at home” than I did when we left. We haven’t found a church to attend that fits. We have been renting a furnished one bedroom apartment, surrounded by someone else’s stuff. What little we have left from our life in Washington has been in storage in Oklahoma for six years. We haven’t made any close friends here (or Oklahoma or Florida), the kind that you can just call up to go to a movie with, the kind of friend that just likes to hang out with you. I’m approaching one of those “big number” birthdays and feel like hardly anyone besides family would celebrate me. Even if I had a birthday party, I don’t know who would attend since we’ve been so unsettled and lived so many places. (Yeah…I’m on a pity party. Don’t worry; it won’t last too long. I will feel celebrated by my wonderful family. They are awesome. Have never been really big on outside-the-family birthday parties for me, anyway, and have only had a couple actual birthday parties in my life.) It’s been a lonely existence at times, though.

We have started looking for a place to buy in North Carolina. It’s not an easy process, this trying to find something in our budget that we like, especially when we are not sure this is really “home” for us. I’m not sure where “home” is any more. I feel like a woman without a country, without a place to connect and grow, without friends, without a “home.” I feel like we have been wandering in this desert of grief for a very long time, and we are just plain weary. We keep on trying. I try to do a good job at my place of employment. Joe has a couple of part time jobs and tries to take good care of Jenna and me. We try to find “something fun to do” on the weekends. We try to lead meaningful and productive lives, but sometimes it’s hard to see the purpose. It’s hard to see where we fit. It’s hard to feel connected and “at home.”

One blogger, a fellow bereaved parent, recently used a phrase that resonated with me – “the complexity of deep heartache.” The complexities of grief are truly deep and vast many, many years after the death of a child.

We had a rough weekend. Looking for houses. Looking for something fun to do. Not succeeding at either one. We just felt so weary and tired of “trying.” At one point, I looked at Joe and said, “We’re lost.” And he agreed.

Too much change. Too much loss.

© 2015 Rebecca R. Carney

My New Reality … Notice I Did Not Say New Normal

This amazing woman inspires me with her clarity of writing and her ability to communicate the depth and width of grief following the death of a child.

From Dee’s blog:

“People’s tolerance for grief runs out quickly. No one knows but those who live it. During these past two years I have met many grievers who have found it necessary to retreat in order to survive. Personally, I have always been afraid to give into that inclination. People do need people as I continue to realize. Many have taken my absence and silence personally just as I have reacted to their sudden hiatus from my life. Even in the early weeks after Amy’s sudden death, people could not resist reminding me how I had changed. How awful to assess a shattered person who is already so self-conscious and feels like an alien. As I recall that now, I understand even more the need to retreat in order to survive.

Grieving the loss of someone you share the deepest loving bond with can be difficult to witness. People will twist and turn your reaction to your devastating loss into intentional wallowing. To quote Mr. “T”, “I pity the fool.” Yes, yes — ignorance is bliss. The reality is that while I will grieve Amy the rest of my life, I remain fully aware my sadness will indeed isolate me from many people from my past. It already has as they need to be in the mood to deal with me and only reach out to me on certain days. Out of obligation, I guess. The confusion lies here as I am not able to go in and out of the ring with them. You are either with me or you are not. And just to be clear, grievers require so little and are not contagious.”



The calendar I was desperately trying to ignore screamed the news to me at 12:23 a.m. on August 4, 2015. Everyone was sleeping when I jolted out of bed, sobbing quietly as I made my way to the sofa in the beach house we had escaped to for this week. Much to my surprise Bailey, our family healer, was stretched out comfortably on the floor in the hall which was so unusual because he never sleeps alone. Was he alone? Since we arrived, I noticed he was content to sit alone in the living room too instead of claiming one of our laps. Another un-Bailey like behavior — especially in a strange place. Our family dog is rather neurotic. It is no wonder he has issues as I wonder whether this 12 lb dog of pure love did indeed sign up for the mega job of comforting a grieving family.

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Happy birthday, my precious Mr. Jay…


Oh, my precious boy…how I miss you…I love you…

Jason's birthday - July 29, 1982

Jason’s birthday – July 29, 1982














My precious Mr. Jay


Jason David Carney - 7/29/82 - 3/3/02

Jason David Carney – 7/29/82 – 3/3/02

© 2015 Rebecca R. Carney