Why We Will Never Get Over It

I would like to share this Facebook post in its entirety. It is the most comprehensive article I’ve read about the longevity of grief following the death of a child.

WHY WE WILL NEVER GET OVER IT

Unfortunately bereaved parents get judged often. By those who know us and by those who don’t.

We are often criticized and pathologized for grieving (for remembering our child.) People erroneously think we are stuck, depressed, and/or clinically-something, if we still cry, ache, and miss our child; if we still remember them; if we continue speaking their name and grieving for them– especially if the grieving has been going on “too long.” Too long could mean 3 months, 6 months, a year– a decade, or longer. It couldn’t possibly be healthy to grieve THAT long, right?

Wrong. We will grieve forever because we love forever. There is no end to our love for our child, therefore there is no end to our grief– not in our lifetime, anyway. We will grieve forever. We will never get over it.

The presumption is that since our child’s death happened years ago– a presumably finite event– how are we not over it by now? As if child loss is something you can get over– likening it to something far less horrific that can be conquered if you only try hard enough, think positively, or pull yourself up by the bootstraps. As if it’s a hurdle you can easily jump over, or a roadblock you can simply go around and then move on. As if sunshine, rainbows and unicorns will magically greet you once enough time has passed and you cross into “I’m-over-it” land. This may work for other things, but not child loss.

It’s time to bust a long-standing myth about child loss and grief. There is no getting over it. Child loss is not something you get over. Ever. You don’t get over watching the living, breathing piece of your heart and soul, your flesh and blood, your child– die. It’s simply not. possible. to get over the death of your child. You will grieve the death of your child until your last breath.

It is said that the decision to have a child is “to decide forever to have your heart go walking around outside your body.” When your child dies your heart is obliterated, broken beyond repair. When your child dies, a huge part of you dies, too. And there is no getting that part back again. Over time you can try to put the pieces of yourself back together again, but they don’t fit the same. There are huge pieces missing, no matter what you do. No matter how long it’s been.

The pain– visible or not– is with us every breath and every step we take, every second of every day. The scars never heal. We are not defined by child loss, but we are certainly marked by it. Forever.

Normal died the day our child did. There is no guidebook for how to survive, or how to grieve. No formula. No roadmap. No start here, end there. The truth is bereaved parents will grieve the loss of their child until their last breath. It may seem confusing why bereaved parents do the things we do; how we’ve chosen to survive and navigate life post-tragedy. From outside of grief, it likely won’t make sense to an onlooker. The good news is, if you don’t understand, breathe a deep sigh of relief and remember one thing: you’re so fortunate (#blessed/lucky/_______) you don’t.

Ultimately to understand means to be bereaved. Which we wouldn’t wish on our worst enemy. We hope no one else truly understands. Ever.

We would have given our life one million times over + infinity to save our child– but, unfortunately we weren’t given that choice. And so, for the rest of our lives, we have to learn how to live with the pain. A pain that is so excruciating, so much like torture, so unimaginable, there’s not even an apt word for it in the English language.

We trip over grief just when we thought we had it contained, figured out, put away, managed. We fall into grief potholes when we least expect it.

We become adept at carrying it, stuffing it, hiding it places. It leaks from our eyes when we least expect it. We sob in the shower, the car, on the bathroom floor. We dry our tears, put our masks back on, so we can move and be and live in the world, to the best of our ability.

Grief steals the person we used to be, and we grieve that, too. The person staring back at us in the mirror becomes almost unrecognizable. We wish we could be who we used to be, too.

We are broken, but there is no fix for our heartache.

We carry it with us, always. Grief exhausts us to the bone. There is no reprieve. No minute, hour, or day off from being a bereaved parent. Once a bereaved parent, always a bereaved parent. There is no going back.

Even during happy or joyful moments, the pain and sadness is always there. A permanent undercurrent, a pulse of pain.

We learn how to carry it all: the joy, the pain, the love, the sadness. Eventually we become an expert at carrying it all.

The moment our child died is now, yesterday, tomorrow, forever. It is the past, the present, and the future. It was not just one finite horrific moment in time that happened last whenever. It is not just the moment, the hour, the second, the millisecond our life became permanently divided into before and after.

You might say, “But she died last year!” Or 10 years ago, or five. No. No, she didn’t.

Our child dies all over again every morning we wake up.
And again every moment they are (yet again) missing.
And again every moment in between.
And again every breath we take.

Our child dies again every moment they are not here with us– for the rest of our lives.

The truth of this fact is almost impossible to express. How many deaths can one parent endure?

For the rest of our lives we will struggle to accept and understand this very fact: our child is dead. And in the incessant replay of our minds our child will keep dying all over again for the rest of our lives.

This is child loss. It is never over. It is always happening. Again and again and again.

We live and relive it. It is now, yesterday, tomorrow– forever.

Just like our love for our child is now, yesterday, tomorrow, forever. It spans both directions. There is no end.

Please remember this next time you hear someone tell a bereaved parent they are dwelling, stuck, depressed, not moving on; that they should just hurry up and get over it– or any other common judgment or misconception. Our pain, our love, and our child cannot be watered down to such phrases, such shallow summations. It does not even begin to capture or express the reality of our day-to-day lives, nor the eternal ache and love in our hearts.

To understand child loss, you have to think about every second, minute, hour, day, month and year a bereaved parent has to live without their precious child– a lifetime— not just the finite moment in time their child died. Every missed milestone, every heart beat, every breath without them, hurts. It hurts now, now and now. It will still be painful 10 and 20 years from now. It will remain an ever-present ache in our heart, soul, mind and body always– until our very last breath.

Child loss is never over. It is a loss that spans a bereaved parent’s entire life.

This is why we will never, ever, get over it. Because “it” is our precious, irreplaceable child. There is no getting over it. There is only love (and pain) to be bravely and courageously carried– for a lifetime.

Credit: https://www.facebook.com/grievingmother/?hc_ref=ARSEvo0TbFrXW87SCMCbS9RBugZy_gSeO59bV5Pe8o1pgHen6yhrdK5uyJYJhCG9ldc

~Becky

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Heavens of Brass

I don’t know how or when it started, but I grew up feeling God was with me, protecting me, that somehow I was favored. It’s not as if I had a wonderful or remarkable childhood or was anyone special. I can’t even explain why I felt like that. It wasn’t really a conscious thought, but I just knew God really, truly cared about me, that he heard my prayers and that they “availed much.” I had a real assurance that I mattered to Him.

As a parent, I truly believed that my prayers for my kids and their friends and for our family really made a difference in this world. Even when our baby died, my faith that God cared and heard my prayers wasn’t shaken. I woke up nearly every night at 3:30 a.m., went downstairs to kneel in front of the couch and pray for our kids, for their friends, for our family. I believed God would protect our kids, that he heard my prayers for them and that he had a plan for them. One year, I gave Jason a beautiful framed scripture that he kept by his bed –  “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11” From the time Jason was born, both Joe and I felt like God’s hand was on him and he had a special purpose in this world. Even as a little boy, he just radiated love and kindness and joy and empathy.

But, I felt like all of that changed when Jason died. For a while, I felt like God was close to me right after Jason died and I could really tell people were praying for us. But, as I wrote in my journal a a couple months later, I could tell that people were moving on and had quit praying for us. I also felt like God had removed his hand of protection, that He no longer heard my prayers. My world came crashing down. I was free falling down a bottomless black hole with nothing and no one to stop me or hear my cries.

I felt God’s presence incredibly close after Jason died. I felt the prayers of people who knew us, lifting us up before the Most High. Somewhere along the line, it seemed as though God wasn’t paying attention any more, that He really didn’t care about the anguish we were going through. Somewhere along the line, I felt like God had abandoned us. I felt like the heavens were brass and my prayers weren’t even reaching the ceiling. I felt that people were no longer praying for us. Somewhere along the line, it seemed as though God’s people didn’t care so much any more. God’s people abandoned us.

https://onewomansperspective02.wordpress.com/2013/12/08/a-crisis-of-faith/

I have struggled with my faith since then, and it seems as nothing has been right or gone right since Jason died. We have truly walked a hard and rocky path since March 3, 2002. Nearly everyone we knew abandoned us. We have wandered and wandered, trying to find a place to be “at home.” We have few I would consider true friends. People we have cared about and trusted have hurt us and proven themselves uncaring and untrustworthy. We have walked through so many difficult things since then, only a fraction of which I have talked about here. The God of grace and mercy I thought I knew seems to have turned his back, and I feel like my prayers go no higher than hitting a heaven of brass. I feel like, as it says in Deuteronomy 28:23, “The skies above will be as unyielding as bronze, and the earth beneath will be as hard as iron.”

I wrote earlier about what it is like to have a crisis of faith.

One of the things I miss most since Jason died (besides Jason and my life as I knew it before my world was shattered) is my unquestioning faith in God. I remember times when my heart was so full with love for God that I thought it would burst. I don’t feel that way any more, at least for now. I remember standing by the cassette player (yes, cassette player) with my eyes closed, singing my pledge of devotion to God along with Andrea Crouch or Clay Crosse. I remember being so moved by a song as I sang in the choir that I could hardly get the words out. “Though He slay me, yet will I trust Him” (Job 13:15) was my anthem. I would have died for my faith, for God.

But what happens when it’s not you who are “slayed” and it’s your child who dies? What happens when you have to face life without your child, when you have to figure out how to go on living without your child? Then it’s not quite so easy to say, is it? I doubt that there isn’t one parent whose child died that gladly wouldn’t have taken his or her child’s place. I would much rather take the brunt of something awful FOR my children than it happen TO any of them. I would gladly have died in Jason’s place.

I keep on trying and trying, praying and hoping for things to turn around for us, but nothing has changed and we are so weary. I feel like I am losing hope. They say hope springs eternal, but I’m not so sure about that any more. The Bible encourages us to “build yourself up in your most holy faith.” What happens when you run out of energy to keep on trying to do that? Where is the “rest for the weary” that is promised?

I have had a crisis of faith. Does that mean I don’t believe in God? No. It just means it seems that what I thought I knew about God wasn’t accurate. It means that what I thought God would “do” for me, He wouldn’t or didn’t do. I thought that if I prayed for my kids that they would be protected. I thought that if I served God with all my heart and tried to do the right things God would make things right for me. I believed that God heard my fervent prayers, that my prayers “availed much” (James 5:16) in the kingdom of heaven and on earth, and that God answered my prayers. I believed God protected my family. I guess I sort of saw God like my own personal genie who could grant me whatever wish I wished for if I wished hard enough for it. That’s not faith; that’s wishful thinking.

Right after Jason died, I remember praying and praying that God would make something good come out of Jason’s death. I didn’t want Jason’s life and death to be for nothing. Both my husband and I felt, from the moment Jason was born, that God had great plans for his life. We felt that he was to do something great for God. And then God didn’t protect Jason and he died. After he died, I prayed that Jason’s life would be like a pebble dropped in a pond, that the ripples of his precious life would be like concentric rings and reach far and wide. Surely, there had to be more to Jason’s life and his living than he would die at the age of 19 before he barely was into adulthood. Surely, “all things work together for good to them that love God, to them who are the called according to his purpose (Romans 8:28),” don’t they? I guess I’m still looking for the “good” to come out of Jason’s death, as I can’t say that I’ve seen it yet.

https://onewomansperspective02.wordpress.com/2013/12/08/a-crisis-of-faith/

I’ve been a Christian for a long time. I picture my faith like a large tree with roots that go deep. But that tree has been nearly cut off at ground level. I’m questioning everything I took for granted – the sayings, the teachings, the cliches, the formulas, the things I thought I knew and understood to be true. Maybe that’s not a bad thing. I think God is big enough and has enough grace to handle my questioning.

I feel like my faith will grow again from the roots up, but it may not look the same as it did. I don’t want some pie-in-the-sky cliche. It’s got to apply to the tough stuff, to daily life. I want a faith and a hope that is real, practical, strong. I want a “rubber meets the road” faith in God that will carry me until I see my boy again.

https://onewomansperspective02.wordpress.com/2011/09/28/the-question-of-faith/

Easter is seen as a time of hope, of renewal, of celebrating the risen Christ. I am very thankful that Jesus died for my sins and that he rose again so that I might have eternal life. Because of that, I know that I will see Jason again.  As I said on Easter last year, “I am thankful for the hope that Easter represents: the death and resurrection of Jesus Christ as a way for us to reconcile our sinful, human natures with the holiness of God, Jesus Christ’s victory over death when he rose from the grave, and the promise of eternal life after death. Without the birth, death and resurrection of Jesus, I would have no hope of seeing Jason again. And I am so incredibly thankful for that hope.” But, I will admit that I still struggle.

My goal in writing this on Easter morning is not to be a downer. If you are one of those people whose Easter is full of joy and hope, if you are celebrating with family, kids, grandkids or friends, if you feel the joy and happiness that Easter might bring, I am so happy for you!

I would ask, however, that you not forget those who might be struggling on this Easter. Those who are alone. Those who are estranged from their kids or family. Those who don’t have the picture-perfect, Easter egg hunting relationship with their grandkids. Those who are missing dearly loved ones. Those whose children have died. Those who are struggling with their faith. Those who feel like the heavens are brass and that God has forsaken them. I’m positive I am not the only one who feels this way. As with all holidays, I believe it’s good to have a reminder to think of and pray for those who may not be as fortunate.

I Corinthians 13

If I speak in the tongues[a] of men or of angels, but do not have love, I am only a resounding gong or a clanging cymbal. If I have the gift of prophecy and can fathom all mysteries and all knowledge, and if I have a faith that can move mountains, but do not have love, I am nothing. If I give all I possess to the poor and give over my body to hardship that I may boast,[b] but do not have love, I gain nothing.

Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.

Love never fails. But where there are prophecies, they will cease; where there are tongues, they will be stilled; where there is knowledge, it will pass away. For we know in part and we prophesy in part, 10 but when completeness comes, what is in part disappears. 11 When I was a child, I talked like a child, I thought like a child, I reasoned like a child. When I became a man, I put the ways of childhood behind me. 12 For now we see only a reflection as in a mirror; then we shall see face to face. Now I know in part; then I shall know fully, even as I am fully known.

13 And now these three remain: faith, hope and love. But the greatest of these is love.

https://www.biblegateway.com/passage/?search=1+Corinthians+13&version=NIV

~Becky

© 2018 Rebecca R. Carney

[I wrote this on Easter morning, but didn’t get a chance to post it before we left the house for the day.]

March 3

My precious boy. Jason David Carney. Life is not the same without you.

7-29-82 – 3-3-02

 

Oh, my boy, how I miss you.

~Mom

© 2018 Rebecca R. Carney

How to Talk to a Parent who is in Grief

Ran across this article today by Samantha Hayward, and thought I would pass it along.  “How to talk to a parent who is in grief. From someone who’s been there.” Samantha’s oldest daughter, Ella, died at 19 days old. I hope you will take time to read it. It’s certainly a good place to start/continue this conversation of what to say to bereaved parents. Good suggestions, all, but I will pass on these three:

1. Four years on I get up every day with the exact same sadness I had the day Ella died.

The only difference is I’m more skilled at hiding it and I’m much more used to the agony of my broken heart. The shock has somewhat lessened, but I do still find myself thinking I can’t believe this happened. I thought that only happened to other people. You asked how I was in the beginning yet you stopped, why? Where did you get the information on what week or month was good to stop asking?

9. I did notice.

To the friends and family that found the entire death and dealing with my sadness all too hard and held secret events behind our backs that were lied about, stopped inviting us to things we had always been included in and slowly ended our relationship thinking I didn’t notice. I did notice. The only reason why I never said anything is because I’m not wasting my words on your shameful behaviour. I am thankful for something though – I didn’t waste any more time on people that were capable of such shallowness and cruelty. Please don’t fear. I would be the first one by your side if the same thing happened to you. That should give you some indication of how horrible it is.

10. Grieving for a child lasts until you see them again.

It’s a lifetime. If you’re wondering how long your friend or family member might be grieving for, the answer is forever. Don’t rush them, don’t trivialise their sadness, don’t make them feel guilty for being sad and when they talk to you, open your ears and listen, really listen to what they’re telling you. It’s possible you’ll learn something. Don’t be so cruel as to give up on them remember it’s not about you it’s about them.

I’ve been left repeatedly heart broken as friends that I truly loved and never thought would walk away from me tossed me into the too hard basket or – more hurtfully – the crazy basket. Phone calls stopped, text messages stopped, comments on Facebook stopped and I get the same thing every time. “Sorry darling I’m just flat out”, “Let’s catch up soon” and “I miss you.” The list could keep going but I get it. I’m not the type of person either that is going to pursue a friendship I know the other person doesn’t want. Everyone has a conscience and thankfully I don’t have to live with theirs.

https://www.mamamia.com.au/ten-points-i-wish-every-person-knew-about-the-death-of-a-child/

Hugs,

Becky

© 2018 Rebecca R. Carney

 

 

A Bereaved Parent’s Christmas

I wrote this five years ago, and find it still true today. Some Christmases seem to be more difficult than others, depending on what’s going on at the time or what we have walked through during the year. This year has been a difficult and stressful one for me, with some unexpected events or circumstances that have hurt me deeply. As a result, this Christmas has been a difficult one.

I’ve had a harder than usual time pulling it together – gift purchasing, enthusiasm level, etc. I still get the panic-y feeling that hits me the first time I walk down the Christmas aisle at the stores, and it hit me hard this year. My energy level and enthusiasm have been low. I’m doing the best I can, but still feel like it’s not enough. Not the same, as though it could ever be. Even as long as I’ve been at this, I tend to subconsciously have the misconception that it should get easier with time. It does, but it still ebbs and flows, rises and falls, hits hard and subsides a bit.

Hugs to all of you this Christmas.

~Becky

Grief: One Woman's Perspective

Christmas…

I’ve been sitting here, listening to Christmas music, and thinking about our Christmases since Jason died.

The first Christmas when I was so numb, hurting so bad, and at a total loss on how to “do” Christmas any more without our precious boy. Finding a chair in the corner at a Christmas party and trying to figure out how not to be the “wet blanket” at the celebration…and trying to be social so people would quit avoiding me – I failed miserably at both of those attempts. Sitting all by myself in the midst of the Christmas decorations strewn all over our family room floor, crying my eyes out as I tried to figure out whether it hurt more to put up or not put up the stockings and decorations we’d collected over the years. The friend who stopped by to pick something up while I was sitting there…

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“A Date Which Will Live in Infamy”

December 7, 1941 was the day the Japanese bombed Pearl Harbor, the U.S. naval base at Oahu Island, Hawaii. Because of this action, the United States entered World War II. December 7th was designated as National Pearl Harbor Remembrance Day by the United States Congress in 1944, and today marks the anniversary of that day in the history of the United States. Every year, including this 76th anniversary of that “date which will live in infamy,” Pearl Harbor survivors, visitors, family and friends visit the World War II Valor in the Pacific National Monument to pause and remember those who died on that day.

There are few wars that don’t affect someone we know. Henry, my husband’s uncle by marriage, fought in the Pacific in World War II, and died when his ship was sunk. He had lived in the Philippines (originally from Colorado), and his wife (Joe’s aunt) had died in a car accident a year or so before the war started. Following Henry’s death, Joe’s grandmother went to the Philippines to bring home Henry’s (and her daughter’s) twin children, then barely aged 2. While she was there, the Japanese invaded the Philippines. Joe’s grandmother and the twins were sent to the Santo Tomas internment camp, where they spent the rest of the war until they were liberated in February, 1945.

As I was driving to work this morning, I thought about the meaning of “a date that will live in infamy.” Infamy means being known for something horrible. We, as parents whose children have died, have our own date that will live in infamy. My personal date that will live in infamy is March 3, 2002, the day Jason died.

Similar to survivors of war, we parents have endured a specific horrendous event on our personal date that will live in infamy, one that affects us and changes our lives in so many ways, more than we ever could have imaged. We are changed so much we, along with our family and friends, don’t even know who we are any more. Some of us end up with PTSD. Some lose friends because of a lack of understanding about the struggle we are having or the path we now are walking. Some have marriages that end. For some, it’s a lifelong struggle. Some never recover. It takes years to recover any semblance of normalcy (if there even is such a thing) and rebuild lives.

We are all changed by our personal date that will live in infamy, the day our children died.

~Becky

© 2017 Rebecca R. Carney