Easter Just Isn’t the Same Any More

IMG_6927Easter just isn’t the same any more, not since Jason died.

Growing up in the home of a pastor, we always celebrated Easter in a special way. New dresses, new shoes, special radio program prepared by the “Singing Knudson’s,” special music and message for church service. We, of course, did none of the Easter bunny stuff at all. It was all about celebrating the burial and resurrection of Jesus.

1988 Easter  36.jpgWe continued the traditions after Joe and I got married and our kids were born. I bought or sewed new clothes for the kids. I made a new dress for myself. I got up really early on Easter Sunday morning and put together the kids’ Easter baskets, filling them with things I had been secretly collecting for weeks. I put the baskets in front of their bedroom doors to find when they first woke up. After breakfast, off we went to church, bright and early on Easter Sunday morning, to celebrate our risen Savior. We went out to lunch after the service, clothed in our Sunday finest. We had Easter egg hunts, either in the park or at our house, with Joe hiding the eggs over and over again for the kids to find. One year, my mom came to visit us for Easter. It was so much fun. Easter was full of fun and joy.

After Jason died, it seemed as though we tried to carry on with the way things had been. We tried to be “normal,” like we used to be. When your world shatters and everything you know changes or disappears, I suppose you try to hold on to what you know in an effort to find your bearings again. Joe had gone back to work, and Jenna and I had gone back to college a week after Jason died. Since Jenna was participating in the Running Start program (going to college and receiving both high school and college credits while still in high school), she needed to complete her credits in order to graduate. So, we went back to school. The car she had shared with Jason had been destroyed in the accident, so we rode to school together until we could find a car for her.

Easter 2002 was on March 31st, just four weeks after Jason died. On Easter Sunday morning, we got up, got dressed and got ready to go to church. As we started to drive to church, Jenna told us she just couldn’t go. Joe and I realized that we just couldn’t go, either. We turned around and went back home, sat on the bed and cried and cried and cried. It was a horrible day, our first “holiday” without Jason.

I think that was the day I began to realize that I didn’t have to – I couldn’t – carry on the way things had been in the past. The “normal” I had known was gone. It was just a very small inkling of realization, one that I would continue – and keep continuing – to learn. I didn’t have to push my family or myself to keep trying to carry on as usual, because the “usual” was no more. I wasn’t the same. None of us were the same. We didn’t have to go to Easter Sunday service four weeks after Jason died, just because it was something we always had done. We needed to do what we felt we could do, what we wanted or needed to do for ourselves.

I wish someone had told me this way back then, that it was okay to give myself permission not to keep on trying to do things the way they had been done. I kept trying to be strong, kept trying to put on a good face, kept trying to go on the way I had before. It was so exhausting trying to act like I had “before.” That’s the thing, though. For a parent whose child has died, there is a very clear line between the “before” and the “after.” Nothing is the same. Nothing will ever be the same. Easter – and all holidays – can never be the same. How could they be? There is a huge hole in our families, in our lives, in our celebrations. We just have to find a way to find new meaning in those events or special days, and new traditions or ways to celebrate.

I am thankful for the hope that Easter represents: the death and resurrection of Jesus Christ as a way for us to reconcile our sinful, human natures with the holiness of God, Jesus Christ’s victory over death when he rose from the grave, and the promise of eternal life after death. Without the birth, death and resurrection of Jesus, I would have no hope of seeing Jason again. And I am so incredibly thankful for that hope.

My precious Jason, I miss you in this Easter season and every day. I love you. I look forward to the day I will see you again.

© 2017 Rebecca R. Carney

 

Question about Non-Profits for Helping Bereaved Parents

I have had a project in my mind for a long time – a non-profit for helping and supporting bereaved parents. I don’t want to duplicate what others have done, but I have wanted to do something to help. Whatever I do, I want it to be entirely relevant and workable.

What I have in mind is something that’s very ambitious – or at least could be in the long run – so I’m not sure if I have the wherewithal to do anything that ambitious, and I don’t think I can do it alone. My heart is telling me that now may be the time. I say that out loud with fear and trepidation, as I haven’t said those words to hardly anyone and I’ve never outlined what I have in mind to anyone.

So, my question is this: Do you know of any non-profit organizations that specifically help and provide resources for bereaved parents? If so, what is their focus, size, any other specifics? Could you please also provide a web link, if one is available? If you have started a non-profit, what has been your process/experience? If you don’t want to put anything public on this site, you can email me at onewomansperspective@hotmail.com.

Thank you.

~Becky

© 2017 Rebecca R. Carney

My Life in Boxes

Last fall, we went to Oklahoma to get the last of our things out of storage and to move them to North Carolina where we now live. They’ve been in storage for seven years since we moved from Oklahoma. We spent two days repacking things into smaller, uniform moving boxes and and once again whittling down our earthly possessions. Again. Deciding what’s important to keep and what’s replaceable. Again. Taking boxes and boxes and boxes of household goods, kitchen items and clothes to Goodwill. Again. I’ve done this process too many times and it’s hard on me every time. If I never again hear the words “we need to get rid of” or the phrase “Are you really keeping that???,” it will be too soon. It seems I always feel pushed into giving away something that really was important to me or that I later wished I had kept.

The last remaining things of our life in Seattle. The last remaining physical items I have that connect me to Jason. The history of our lives. Photographs. Scrapbooks. Christmas ornaments. Momentos of our lives when the kids were little. Jason’s chess set. A few books. A couple of my dad’s Bibles. Tax records. Important papers.

Less than 50 12″ x 12″ x 18″ boxes. Less than 50 boxes is all we moved. That’s all we have left. Seriously, that’s all we have left that we can call our own (since moving from Oklahoma seven years ago, we have lived in rented, fully-furnished one bedroom apartments in both Florida and North Carolina, so we don’t have any furniture, etc.). Less than 50 boxes. It seems like such a small amount of things that reflect the busy, fun, full life we had before Jason died and the big house and home that was so filled with love and activity. Sometimes it feels like my life has shrunk so small since then.

But, those items in those boxes also are a reminder that physical things are just that – things. They are just things. I lived without seeing or physically touching those things for seven years. Although those things may remind us of Jason and the time he was alive, there is no way those flat, one-dimensional items can truly reflect the real Jason – the awesome person he was, his intelligence and humor, his beautiful blue eyes, the many facets of his wonderful and Godly character, and his truly kind and loving nature. Those are things that can only be held closely and fully in our hearts and memories.

Holding you close in my heart and in my memories today, my precious boy. I miss you and I love you more than words can say. I look forward to the day I can see you and hug the real you once again.

~Becky

© 2016 Rebecca R. Carney

A Momentous Year

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Birthday letter to Jason July 29, 2001. The pastor read this letter at Jason’s memorial service.

The morning of July 29, 2001, I woke up really early, and I knew the instant I woke up that I wanted to write Jason a special note for his 19th birthday. I just had to let him know how special he was to me and how much I appreciated him for who he was.

We tend to think of milestone birthdays as those  more momentous than others and seem to carry more “weight” or reason to celebrate than others. It’s not that the other years aren’t celebrated, it seems that bit more emphasis tends to be placed on those birthdays than others. What those birthdays represent have a stronger meaning. Turning sixteen tends to represent being able to get a driver’s license. Eighteen represents becoming an adult and going off to college or some other type of independent step. For some, twenty-one represents being able to purchase alcohol. Latin cultures have a huge quinceañera celebrations when a girl turns fifteen. Jewish communities celebrate the milestone of a boy turning thirteen with a bar mitzvah. In my mind, as I wrote in the note, I thought it wasn’t one of the ones we typically think of as momentous.

IMG_2558Little did I know, at the time, how momentous that birthday would be. It was the last one we would ever celebrate here on this earth with him.

That year, we celebrated on Jason’s actual birthday with our family and some of his closest friends, and then we had a large joint birthday party at a local park for Jason and his good friend, Justin. Just looking at those pictures, I can tell he was happy and that he knew he was loved. He loved being with family and friends. He loved to have fun.

On July 29th this year, we would have celebrated Jason’s 34th birthday. I can only imagine what his life would have been like and what he would have accomplished by now. What would he be doing? Who would he have married? Would he have children? We’ll never know the answers to those questions.

I am so glad Jason was born into our family. He was 9 pounds, 10 1/2 ounces of pure joy. Kind, loving, thoughtful, empathetic, intelligent, funny. There aren’t enough words in my vocabulary to describe what a special guy he was and how much I love him. And no matter how many years go by, I will always love and miss my precious boy. Happy birthday, Jason.

 

© 2016 Rebecca R. Carney

A Better World

I dream of a better world

But how can there be a “better world” when you are not in it?

You made this world better and brighter

And it is so much less so now that you are gone.

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I miss you, my precious boy.

© 2016 Rebecca R. Carney

Trust, Once Broken, is Not Easily Mended

When the kids were little, I tried to teach them the incredible value of trust. Miriam-Webster dictionary gives one definition of trust as “assured reliance on the character, ability, strength, or truth of someone or something; one in which confidence is placed (my emphasis on words in italics).” Trust is the basis of our close, meaningful friendships and relationships. Trust is the basis of a successful relationship between employer and employee.Trust is imperative in the relationship between spouses and between family members.

imagesAs a way of communicating this intangible concept to the kids, I used a couple of visual examples to show the consequences of breaking someone’s trust. We set up a pattern with dominos on the dining room table, the kind where you touch the first one to knock it over and that starts a chain reaction of the rest falling over. I wanted to show them that one action could affect many things. One action can lead to broken trust and can create an series of unintended consequences, much like the falling dominos.

481000578I also showed them one of my glass flower vases and asked them what they thought would happen if I smashed it on the ground. We talked about whether or not it could ever be put back together again. Even if we were able to find all the pieces and put them back together (which would be highly unlikely), it would never look or function the same. Once broken, not easily mended.

In my last post, I wrote about secondary losses. Following the death of a child, one of these secondary losses can be the loss of friendship, either immediately following the death of the child or as times goes by. The saying ” grief changes your address book” is true.  Initially, people may not know what to do or say, so they stay away. As time goes by, people may get tired of how long it takes to “get over” the death of a child and decide to move on. Either way, it’s fairly common to lose friends following the death of a child. (The online magazine, Still Standing, has an excellent article on this topic.)

I’ve also written about the loss of friendship after Jason died. Losing friends following the death of a child is hard. I recently read an article about the psychology behind people leaving alone people in crisis. The article quotes Barbara M. Sourkes, associate professor of pediatrics at the Stanford University School of Medicine: “When you’re confronted by someone else’s horror, there’s a sense that it’s close to home.” Too close to home, I would add. The article also lists reasons people may disappear – people don’t like to feel helpless, awkwardness around crises, feeling too much empathy in picturing that it could happen to them or their children, or creating distance so that it doesn’t seem real (out of sight/out of mind), feeling guilty that they’re so glad its not them, or feeling like if they stay away from the crisis that it won’t happen to them. Whatever the reason is or whenever the reason people disappear doesn’t make the loss any easier.

In some ways, I think people were waiting until we were “better,” waiting until enough time passed until…what??…until we weren’t so sad? I don’t know. There really is no such thing as “getting better.” One gal told me she wanted to make sure we had enough family time. Christmas 2002, nearly 10 months after Jason died, we had a few more people that usual call. At the time, I felt like people felt like it was safe to try to reconnect, but we weren’t the same people they used to know. Those relationships just weren’t the same.

When people walked away from us, I lost a lot of respect for them. It was hard feeling abandoned by those we expected to support us. Trust was broken. Our confidence in their ability to be true, kind, compassionate friends was broken. Those relationships were broken because of the broken trust. It was hard to feel like they really wanted to be in our lives, that they really wanted to be true friends again. If they really wanted to be our friends, why would they have abandoned us? As I said in my “toolbox” post, I am very guarded. I keep my shield close at hand, ready to put it up to protect my heart. That makes it really hard to let people in and trust that they really do care. It’s a hard thing to start trusting again.

I’ve really tried recently to be more open and trusting. I’ve tried to remove bricks from the walls I’ve put up around myself over the years – walls of protection and self-preservation. I’ve tried to allow people into my life. I’ve tried to be friendly and open to new friendships. It’s a really hard thing to do, this allowing people to be close to me. I’m really guarded. I don’t know if they can handle the brokenness in my life. I don’t know if they will think enough time has passed since Jason died that it shouldn’t bother me any more. I don’t want to be judged or to become a project to be “made better.” I don’t know if they will accept me for who I am. I don’t know if I can trust them to be there for me. It’s just so dang hard for me to do.

I recently confided something in a gal I thought to be a friend. She immediately passed it on to someone else, who came to talk to me about it. It was a trust-shattering moment. I continue to try to forgive that breach of trust, but I no longer look at that friendship the same. I no longer feel that relationship is worthy of my trust.

Trust is a huge issue for me. I want to be trustworthy – worthy of people entrusting things to me, knowing I will handle that trust with care. I want to have people around me that are trustworthy – worthy of entrusting them with my brokenness and fragile heart, knowing they will handle my trust with care.

Things are no longer simple following the death of a child. Navigating this life is more like canoeing down rapids than paddling on a calm lake. We have to be diligent and careful moving down this life-path. It’s like our radar always is on, scanning for things that might rock our boat. For example, Jason’s birthday is coming up, and I have learned that things that don’t normally bother me might make me sad. I have to be aware of that. I have to be aware of emotional triggers.

I have to read what’s the content of movies or TV shows. After Jason died, I couldn’t watch movies or TV shows that had car crashes in them. I couldn’t watch loud movies. I couldn’t watch movies about children dying (still can’t). I can’t watch high stress movies or TV shows. When scenes are particularly tense, I still have to close my eyes and breathe deeply until the scene is over.

I have to determine if I can trust someone. I have to judge conversations with people I have just met as to whether or not I should mention Jason. When someone asks me about how many children I have, can they handle the fact that I have a child who died? Is this a passing conversation with someone who moves on or is this someone who might stick around a while? If I do talk about Jason’s death, will they disappear like people did just after Jason died? Can I trust this person enough with my heart to believe that they won’t inflict further hurt? Will they not shatter my trust? Who can I trust?

People make mistakes. I understand that. We are all human and need to extend grace to each other. I’ve worked really hard on forgiving those that have hurt us. But, I also understand that trust once broken is not easily mended. It’s hard to let people that have broken our trust back into our hearts and into our lives.  It’s just never quite the same. Once that glass vase drops, it’s hard to put the pieces back together.

~Becky

© 2016 Rebecca R. Carney

 

Photo credits:

Domino photo – https://www.videoblocks.com/video/line-of-white-dominoes-falling-ykoznpb/

Shattered glass photo – www.gettyimages.com

Articles quoted:

miriam webster trust

http://stillstandingmag.com/2014/08/losing-friends-child-loss/

 

The High Cost of Losing a Child

I think it’s safe to say that those who have not experienced the death of the child can understand, on some level, that it is a huge, incomprehensible loss. I’m not sure anyone outside the “club no one wants to join” – the “club” of parents whose children have died – can truly understand the impact of such loss, though. I would never wish that understanding on anyone, because that would mean they would have to walk this horrible walk of grief. But, I also think it is safe to say that there is even less understanding regarding secondary losses following the death of a child.

Before Jason died, I never could have imagined the walk we have had to walk. It’s been a rough one, and saying that is an understatement. Jason’s death has affected our family in so many ways. Our lives were shattered when Jason died. And then it seemed like so many other things have broken off and shattered, too, along the way. Friendships. Income. Loss of identity. So many additional losses. Secondary losses.

I think the whole secondary loss thing caught me by surprise. These additional losses were really hard to process. Friends who disappeared. People who avoided us. Questioning my faith. Too many losses to count. I’ve written about some of these secondary losses over the years. It’s difficult to understand how someone who has suffered such a huge loss would continue to have additional losses piled on top. Losses on top of more losses. It’s hard to comprehend and process so much loss. The secondary losses make the load of grief even heavier to bear.

I recently read a good article that talks about secondary losses. The author explains that secondary losses are a result of the primary loss. Our grief encompasses both the primary loss AND the secondary losses. The secondary losses are precipitated by the primary loss (the death of our child), but they become a part of our overall grief.

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The author writes, “Though it is easy to think that our grief is solely the grief of losing the person we cared for so deeply, our grief is also the pain of the other losses that were a result of the death.” One grief, many  parts. Yes, I grieve Jason’s death. His death is the big, huge hole in our lives and is the main reason for my grief. But his death also created other losses that I grieve.  I miss friends I used to have. I miss our home. I miss the feeling of security. Had Jason not died, I would not have experienced these and many more losses. All of these secondary losses are interconnected to the primary loss to some degree.

The also author states, “Understanding the possibility of experiencing grief from these secondary losses can help build self-awareness and help identify complexities of our own grief.  Once we have identified these losses we are better equipped to face and mourn them.  We begin to understand that the whole of our grief is comprised of many parts, including the primary loss and the secondary losses.” (http://www.whatsyourgrief.com/secondary-loss-one-loss-isnt-enough/)

I’m not sure I agree completely with this particular concept that we can build a self-awareness in order to be better prepared for secondary losses, especially right after the death of a child. And I’m not sure why there would be a reason to anticipate we would want to prepare for such losses if we didn’t know our child was going to die. Perhaps this would help in the event of a terminally ill child, but, wouldn’t the parent be dealing with enough anyway? I don’t know. Sometimes there’s just no way to prepare for certain things.

I don’t think it would have been helpful to me if someone had come up to me early on in this grief journey, right after Jason died, and said to me, “Just wanted you to be aware that you will probably experience additional losses in your life besides the loss/death of Jason, so you had better prepare your self for it.” I was so overwhelmed by Jason’s death, in and of itself, that I don’t think I could have handled it and probably would have rejected the concept of more loss. At some point, we all will deal with secondary losses; I guess it’s just a matter of timing. It didn’t help me, for example, when I went to a local Compassionate Friends group right after Jason died, to hear one gal say to me (after I had explained to the group why I had started to attend), “Oh, you’re just a baby (in your grief process).” I realize now that, at the time she said that to me, I was just a few steps into this journey and that I had (and still have) a long journey ahead of me. At the time, though, it was not a helpful comment and was poor timing. (I never went back to that group.)

But, I still think she has some good things to say about understanding and identifying secondary losses. I also think it’s important to understand that the primary loss of the death of a child can create secondary losses. Those secondary losses may be immediate or the may happen over time. For example, our loss of friendships was more or less immediate. Another mother told me that she had great support after the death of her daughter, but then nearly all of her friends disappeared over time as they got tired of hearing about her grief and felt like she was not “getting over it” quickly enough. No one will experience the same grief or the same losses, whether primary or secondary.

I hope you will take time to read the article: Secondary Loss – one loss isn’t enough??!! As always, I appreciate your input.

~Becky

© 2016 Rebecca R. Carney